Anne Cambon-Thomsen

83
Documents
Affiliations actuelles
  • Equipe BIOETHICS (CERPOP)
  • Centre d'Epidémiologie et de Recherche en santé des POPulations (CERPOP)
  • Centre National de la Recherche Scientifique (CNRS)
Contact

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Publications

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Bioethics “Laws”: Paradox or Way of the Future?

Emmanuelle Rial-Sebbag , Anne Cambon-Thomsen
Edward S. Dove; Vasiliki Rahimzadeh; and Michael J. S. Beauvais; Editors. Promoting the “Human” in Law, Policy, and Medicine, Volume: 1, Brill | Nijhoff, pp.113-130, 2024, Series: Global Health, Human Rights and Social Justice, 9789004688544. ⟨10.1163/9789004688544_015⟩
Chapitre d'ouvrage hal-04828879 v1
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Ethical and legal frameworks for embryonic stem-cell based research in France and in Europe: a challenge for biotechnology

Anne-Marie Duguet , Emmanuelle Rial-Sebbag , Aurélie Mahalatchimy , Mou Li , Anne Cambon-Thomsen
CUPL. Biotechnology Medicine and Law, 2018, 978-7-5620-8420-4
Chapitre d'ouvrage halshs-01938427 v1
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In need for a modern Daedalus? The challenging regulatory path for marketing gene therapy medicinal products in China and Europe

Aurélie Mahalatchimy , Anne-Marie Duguet , Wen Meng , Heidi Carmen Howard , Anne Cambon-Thomsen et al.
Q. Yanping, A.-M. Duguet. Biotechnology Medicine and Law, China University of Political Science and Law Press, 2018, 978-7-5620-8420-4
Chapitre d'ouvrage halshs-01938345 v1

Quelles sont les motivations des patients à accepter ou à refuser de rentrer dans un protocole d’essai clinique lié à la transplantation ? Quelles connaissances ont ces patients sur les traitements accompagnant la transplantation ?

Myriam Guedj , Marion Goasdoue , Lionel Rostaing , Nassim Kamar , Vincent Donkier et al.
I. Filippi; A.M. Duguet; L. Deffrennes. Les études hospitalières, pp.237-250, 2011
Chapitre d'ouvrage hal-04561054 v1
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Users and uses of the biopolitics of consent: a study of DNA banks.

Pascal Ducournau , Anne Cambon-Thomsen
The Ethics of Research Biobanking, Springer US, p. 33-48, 2009
Chapitre d'ouvrage halshs-00490789 v1

Users and Uses of the biopolitics of Consent.

Pascal Ducournau , Anne Cambon-Thomsen
The ethics of research biobanking, Springer Verlag, p., 2009
Chapitre d'ouvrage halshs-00471509 v1

Conduire vers la science. Une étude de cas sur les diaporamas de vulgarisation scientifique, J. Le Marec, Laboratoire C2So

Pascal Ducournau , Anne Cambon-Thomsen
Chapitre du rapport : Images et Sciences pour l'ACI Terrains Techniques, Théories, ENS, Lyon, pp.53-64, 2007
Chapitre d'ouvrage hal-00198108 v1

Le vivant à l'épreuve des collections : carrières de biobanques et d'échantillons biologiques

Fabien Milanovic , Emmanuelle Rial-Sebbag , Anne Cambon-Thomsen , Pascal Ducournau
Rapport de recherche intermédiaire pour le compte du Programme Sciences biomédicales, santé et société, Inserm-Mire-Drees, pp.25, 2005
Chapitre d'ouvrage hal-00198110 v1

Chapitre 8. Annoncer ou pas la découverte d’anomalies non sollicitées lors d’un test génétique à séquençage haut débit ? Un exemple de recherche permettant de comprendre le poids donné au consentement dans la prise de décision

Myriam Guedj , Marion Rosier , Patrick Calvas , Sophie Julia , Christelle Garnier et al.
Journal international de bioéthique et d'éthique des sciences , 2023, Vol. 34 (2), pp.121-130. ⟨10.3917/jibes.342.0121⟩
Article dans une revue hal-04448145 v1
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Application of Genomic Sequencing to Refine Patient Stratification for Adjuvant Therapy in Renal Cell Carcinoma

Naveen S Vasudev , Ghislaine Scelo , Kate I Glennon , Michelle Wilson , Louis Letourneau et al.
Clinical Cancer Research, 2023, 29 (7), pp.1220-1231. ⟨10.1158/1078-0432.ccr-22-1936⟩
Article dans une revue cea-04342730 v1

A 12-gene pharmacogenetic panel to prevent adverse drug reactions: an open-label, multicentre, controlled, cluster-randomised crossover implementation study

Jesse Swen , Cathelijne van der Wouden , Lisanne En Manson , Heshu Abdullah-Koolmees , Kathrin Blagec et al.
The Lancet, 2023, 401 (10374), pp.347-356. ⟨10.1016/S0140-6736(22)01841-4⟩
Article dans une revue hal-04590530 v1
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Genome-Wide Meta-Analysis Identifies Variants in DSCAM and PDLIM3 That Correlate with Efficacy Outcomes in Metastatic Renal Cell Carcinoma Patients Treated with Sunitinib

Meta H M Diekstra , Jesse J Swen , Loes F M van der Zanden , Sita H Vermeulen , Epie Boven et al.
Cancers, 2022, 14 (12), pp.2838. ⟨10.3390/cancers14122838⟩
Article dans une revue hal-04761513 v1
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Selection of data sets for FAIRification in drug discovery and development: Which, why, and how?

Ebtisam Alharbi , Yojana Gadiya , David Henderson , Andrea Zaliani , Alejandra Delfin-Rossaro et al.
Drug Discovery Today, 2022, 27 (8), pp.2080-2085. ⟨10.1016/j.drudis.2022.05.010This⟩
Article dans une revue hal-04760066 v1
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The ethics of genomic medicine: redefining values and norms in the UK and France

Marie Gaille , Ruth Horn , Mark Bale , Catherine Bourgain , James Buchanan et al.
European Journal of Human Genetics, 2021, 29, pp.780 - 788. ⟨10.1038/s41431-020-00798-2⟩
Article dans une revue hal-03254485 v1
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International transfers of personal data for health research following Schrems II: a problem in need of a solution

Dara Hallinan , Alexander Bernier , Anne Cambon-Thomsen , Francis Crawley , Diana Dimitrova et al.
European Journal of Human Genetics, 2021, 29 (10), pp.1502-1509. ⟨10.1038/s41431-021-00893-y⟩
Article dans une revue hal-03575582 v1

Attitudes of French populations towards the disclosure of unsolicited findings in medical genetics

Marion Rosier , Myriam Guedj , Patrick Calvas , Sophie Julia , Christelle Garnier et al.
Journal of Health Psychology, 2021, 26 (11), pp.1767-1779. ⟨10.1177/1359105319886622⟩
Article dans une revue hal-02492010 v1

International transfers of health research data following Schrems II: A problem in need of a solution

Dara Hallinan , Alexander Bernier , Anne Cambon-Thomsen , Francis Crawley , Diana Dimitrova et al.
Article dans une revue hal-04692729 v1

Essai clinique et traitement : quelle éthique en cas d'urgence sanitaire ?

Bettina Couderc , Anne-Marie Duguet , Anne Cambon-Thomsen , Emmanuelle Rial-Sebbag
Exploreur, 2020
Article dans une revue hal-04691812 v1
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FAIRness Literacy: The Achilles’ Heel of Applying FAIR Principles

Romain David , Laurence Mabile , Alison Specht , Sarah Stryeck , Mogens Thomsen et al.
CODATA Data Science Journal, 2020, 19 (32), pp.1-11. ⟨10.5334/dsj-2020-032⟩
Article dans une revue hal-02483307 v2
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Loi de bioéthique. Pourquoi une révision en 2020 ? Avec quelles limites dans le contexte international ?

Anne Cambon-Thomsen
Parcours. Cahiers du GREP Midi-Pyrénées, 2020, 60, pp.273-282
Article dans une revue hal-04691759 v1
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Fostering global data sharing: highlighting the recommendations of the Research Data Alliance COVID-19 working group

Claire Austin , Alexander Bernier , Louise Bezuidenhout , Juan Bicarregui , Timea Biro et al.
Wellcome Open Research, 2020, 5, pp.267. ⟨10.12688/wellcomeopenres.16378.2⟩
Article dans une revue hal-03575569 v1
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French People’s Views on the Appropriateness of Disclosing an Unsolicited Finding in Medical Genetics: A Preliminary Study

Marion Rosier , Myriam Guedj , Patrick Calvas , Sophie Julia , Christelle Garnier et al.
Universitas Psychologica, 2018, 17 (4), pp.1-11. ⟨10.11144/Javeriana.upsy17-4.fpva⟩
Article dans une revue hal-01952989 v1

Guidelines for reporting secondary findings of genome sequencing in cancer genes: the SFMPP recommendations

Pascal Pujol , Pierre Vande Perre , Laurence Faivre , Damien Sanlaville , Carole Corsini et al.
European Journal of Human Genetics, 2018, 26 (12), pp.1732-1742. ⟨10.1038/s41431-018-0224-1⟩
Article dans une revue hal-01870352 v1
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Title: How to responsibly acknowledge research work in the era of big data and biobanks: Ethical aspects of the Bioresource Research Impact Factor (BRIF)

Heidi Carmen Howard , Deborah Mascalzoni , Laurence Mabile , Gry Houeland , Emmanuelle Rial-Sebbag et al.
Journal of Community Genetics, 2017, ⟨10.1007/s12687-017-0332-6⟩
Article dans une revue inserm-01978434 v1

Mechanisms of the Development of Allergy (MeDALL): Introducing novel concepts in allergy phenotypes

Josep Antó , Jean Bousquet , Mübeccel Akdis , Charles Auffray , Thomas Keil et al.
Journal of Allergy and Clinical Immunology, 2017, 139 (2), pp.388 - 399. ⟨10.1016/j.jaci.2016.12.940⟩
Article dans une revue hal-01784524 v1

Value of ultrasonography as a marker of early response to abatacept in patients with rheumatoid arthritis and an inadequate response to methotrexate: results from the APPRAISE study

Minh Vu Chuong Nguyen , Xavier Romand , Candice Trocme , Anaïs Courtier , Hubert Marotte et al.
Annals of the Rheumatic Diseases, 2016, 75 (10), pp.1763-1769. ⟨10.1136/annrheumdis-2015-207709⟩
Article dans une revue hal-02467707 v1
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Judging health risk as a function of risk factors and type of illness: Do people weight risk factors in a flexible way?

Myriam Guedj , Etienne Mullet , Anne Cambon-Thomsen
Journal of Health Psychology, 2016, 21 (5), pp.832-843. ⟨10.1177/1359105314539532⟩
Article dans une revue hal-01926515 v2
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Quand l’anticipation devient plurielle : la complexité des données génomiques à l’épreuve des pratiques professionnelles

Sophie Julia , Gabrielle Bertier , Anne Cambon-Thomsen
Revue française d'éthique appliquée, 2016, N° 2 (2), pp.19-28. ⟨10.3917/espri.1407.0017.2⟩
Article dans une revue hal-04590637 v1
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Biobankers: Treat the Poison of Invisibility with CoBRA, a Systematic Way of Citing Bioresources in Journal Articles

Federica Napolitani , Alessia Calzolari , Anne Cambon-Thomsen , Laurence Mabile , Anna Maria Rossi et al.
Biopreservation and Biobanking, 2016, 14 (4), pp.350-352. ⟨10.1089/bio.2015.0105⟩
Article dans une revue inserm-01978603 v1

Towards new tools for bioresource use and sharing.

Laurence Mabile , Paola de Castro , Elena Bravo , Barbara Parodi , Mogens Thomsen et al.
Information Services and Use, 2016
Article dans une revue hal-01807865 v1
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Promesses de biobanques : Se soucier de l’avenir dans l’éthique de la recherche biomédicale

Alexandra Soulier , Cambon-Thomsen, Anne
Revue française d'éthique appliquée, 2016
Article dans une revue hal-03254477 v1
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Paving the way of systems biology and precision medicine in allergic diseases: the MeDALL success story

J. Bousquet , J.M. Anto , M. Akdis , C. Auffray , T. Keil et al.
Allergy, 2016, 71 (11), pp.1513 - 1525. ⟨10.1111/all.12880⟩
Article dans une revue (article de synthèse) hal-01872911 v1

Association between RANK, RANKL and OPG polymorphisms with ACPA and erosions in rheumatoid arthritis: results from a meta-analysis involving three French cohorts

A. Ruyssen-Witrand , Alain Cantagrel , Yannick Degboé , D Nigon , C. Lukas et al.
RMD Open : Rheumatic & Musculoskeletal Diseases, 2016, 2 (2), pp.e000226. ⟨10.1136/rmdopen-2015-000226⟩
Article dans une revue hal-01819665 v1

Genome Editing and Dialogic Responsibility: “What's in a Name?”

Alessandro Blasimme , Ignacio Anegon , Jean-Paul Concordet , John de Vos , Anne Dubart-Kupperschmitt et al.
American Journal of Bioethics, 2015, 15 (12), pp.54 - 57. ⟨10.1080/15265161.2015.1103811⟩
Article dans une revue hal-01893149 v1
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A new classification of HLA-DRB1 alleles based on acid-base properties of the amino acids located at positions 13, 70 and 71: impact on ACPA status or structural progression, and meta-analysis on 1235 patients with rheumatoid from two cohorts (ESPOIR and EAC cohort).

Adeline Ruyssen-Witrand , Hanna W van Steenbergen , Jurgen van Heemst , Pierre-Antoine Gourraud , Delphine Nigon et al.
RMD Open : Rheumatic & Musculoskeletal Diseases, 2015, 1 (1), pp.e000099. ⟨10.1136/rmdopen-2015-000099⟩
Article dans une revue hal-01560005 v1

Are allergic multimorbidities and IgE polysensitization associated with the persistence or re-occurrence of foetal type 2 signalling? The MeDALL hypothesis

J. Bousquet , J. M. Anto , M. Wickman , T. Keil , R. Valenta et al.
Allergy, 2015, 70 (9), pp.1062--1078. ⟨10.1111/all.12637⟩
Article dans une revue hal-02005982 v1
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Developing a guideline to standardize the citation of bioresources in journal articles (CoBRA)

Elena Bravo , Alessia Calzolari , Paola de Castro , Laurence Mabile , Federica Napolitani et al.
BMC Medicine, 2015, 13, pp.33. ⟨10.1186/s12916-015-0266-y⟩
Article dans une revue inserm-01978646 v1
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Proposal for a European Public Health Research Infrastructure for Sharing of health and Medical administrative data (PHRIMA).

Anita Burgun , Dina V Oksen , Wolfgang Kuchinke , Hans-Ulrich Prokosch , Thomas Ganslandt et al.
Studies in Health Technology and Informatics, 2015, 216, pp.1005. ⟨10.3233/978-1-61499-564-7-1005⟩
Article dans une revue hal-01232643 v1
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Systems medicine approaches for the definition of complex phenotypes in chronic diseases and ageing. From concept to implementation and policies.

Jean Bousquet , Christian Jorgensen , Michel Dauzat , Alfredo Cesario , Thierry Camuzat et al.
Current Pharmaceutical Design, 2014, 20 (38), pp.5928-44. ⟨10.2174/1381612820666140314115505⟩
Article dans une revue hal-01952751 v1

Association of IL-2RA and IL-2RB genes with erosive status in early rheumatoid arthritis patients (ESPOIR and RMP cohorts).

Adeline Ruyssen-Witrand , Cedric Lukas , Delphine Nigon , Karen Dawidowicz , Jacques Morel et al.
Joint Bone Spine, 2014, 81 (3), pp.228-34
Article dans une revue hal-01558258 v1
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Measuring the contribution of tumor biobanks to research in oncology: Surrogate indicators and bibliographic output

Véronique Hofman , Marius Ilie , Elodie Long , Kevin Washetine , Christian Chabannon et al.
Biopreservation and Biobanking, 2013, 11 (4), pp.235-244. ⟨10.1089/bio.2013.0015⟩
Article dans une revue inserm-01978789 v1
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Producing 'Human Elements Based Medical Technologies' in Biotech Companies: Some Ethical and Organisational Ingredients for Innovative Cooking

Virginie Tournay , Emmanuelle Rial-Sebbag , Doerte Bemme , Aurélie Mahalatchimy , Céline Granjou et al.
Science Technology and Society, 2013, 18 (1), pp.93 - 114. ⟨10.1177/0971721813484381⟩
Article dans une revue hal-01560540 v2
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Mapping the translational science policy 'valley of death

Eric Meslin , Alessandro Blasimme , Anne Cambon-Thomsen
Clinical and Translational Medicine, 2013, 2 (1), pp.14. ⟨10.1186/2001-1326-2-14⟩
Article dans une revue inserm-00849416 v1

Genomic incidental findings: reducing the burden to be fair.

Anastova Velizara , Alessandro Blasimme , Julia Sophie , Anne Cambon-Thomsen
American Journal of Bioethics, 2013, 13 (2), pp.52-4. ⟨10.1080/15265161.2012.754066⟩
Article dans une revue inserm-00803907 v1
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Quantifying the use of bioresources for promoting their sharing in scientific research.

Laurence Mabile , Raymond Dalgleish , Gudmundur Thorisson , Mylène Deschênes , Robert Hewitt et al.
GigaScience, 2013, 2 (1), pp.7. ⟨10.1186/2047-217X-2-7⟩
Article dans une revue inserm-00823375 v1

Patients' motives for consenting or refusing to participate in a clinical trial in organ transplantation

Myriam Guedj , Sandrine Ballester , Nassim Kamar , Lionel Rostaing , Vincent Donckier et al.
Clinical Transplantation, 2013, 27 (5), pp.724-731. ⟨10.1111/ctr.12214⟩
Article dans une revue istex hal-01953018 v1

Disclosing results to genomic research participants: differences that matter.

Alessandro Blasimme , Alexandra Soulier , Sophie Julia , Samantha Leonard , Anne Cambon-Thomsen
American Journal of Bioethics, 2012, 12 (10), pp.20-2. ⟨10.1080/15265161.2012.699149⟩
Article dans une revue inserm-00803909 v1
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The European Medicines Agency: A public Health European Agency?

Aurélie Mahalatchimy , Emmanuelle Rial-Sebbag , Nathalie de Grove-Valdeyron , Virginie Tournay , Anne Cambon-Thomsen et al.
Medicine and Law Journal, 2012, 31 (1), pp.25 - 42
Article dans une revue hal-01560579 v1
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Understanding the complexity of IgE-related phenotypes from childhood to young adulthood: A Mechanisms of the Development of Allergy (MeDALL) Seminar

Josep M Antó , Mariona Pinart , Mübeccel Akdis , Charles Auffray , Claus Bachert et al.
Journal of Allergy and Clinical Immunology, 2012, 129 (4), pp.943-954.e4. ⟨10.1016/j.jaci.2012.01.047⟩
Article dans une revue hal-04323435 v1

Link between traditional cardiovascular risk factors and inflammation in patients with early arthritis: results from a French multicenter cohort.

Jean Boyer , Vanina Bongard , Alain Cantagrel , Bénédicte Jamard , Jacques-Eric Gottenberg et al.
Arthritis Care & Research = Arthritis Care and Research, 2012, 64 (6), pp.872-880. ⟨10.1002/acr.21623⟩
Article dans une revue hal-01557749 v1
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New insights into the genetics of immune responses in rheumatoid arthritis.

Adeline Ruyssen-Witrand , Arnaud Constantin , Anne Cambon-Thomsen , Mogens Thomsen
Tissue Antigens, 2012, 80 (2), pp.105-18. ⟨10.1111/j.1399-0039.2012.01939.x⟩
Article dans une revue inserm-00730978 v1

MeDALL (Mechanisms of the Development of ALLergy): an integrated approach from phenotypes to systems medicine.

J. Bousquet , J. Anto , C. Auffray , M. Akdis , A. Cambon-Thomsen et al.
Allergy, 2011, 66 (5), pp.596-604. ⟨10.1111/j.1398-9995.2010.02534.x⟩
Article dans une revue hal-00595853 v1

Les Fondements de l'Ethique de la Recherche en Droit Communautaire [The Foundation of Research Ethics in Community Law].

Gauthier Chassang , Emmanuelle Rial-Sebbag , Anne Cambon-Thomsen
International Journal of Bioethics, 2011, 22 (1), pp.187-203, 218
Article dans une revue inserm-00616773 v1
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Systems medicine and integrated care to combat chronic noncommunicable diseases

Jean Bousquet , Josep M. Anto , Peter J. Sterk , Ian M. Adcock , Kian Fan Chung et al.
Genome Medicine, 2011, 3, pp.43. ⟨10.1186/gm259⟩
Article dans une revue hal-01358549 v1
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Genetic Testing and Common Disorders: How to Assess Relevance and Possibilities

Martina C Cornel , Frauke Becker , Carla van El , Dolores Ibarreta , Eleni Zika et al.
European Journal of Human Genetics, 2011, ⟨10.1038/ejhg.2010.176⟩
Article dans une revue hal-00611246 v1

International network of cancer genome projects.

Thomas J. Hudson , Warwick Anderson , Axel Artez , Anna D. Barker , Cindy Bell et al.
Nature, 2010, 464 (7291), pp.993-8. ⟨10.1038/nature08987⟩
Article dans une revue hal-00868358 v1
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Practical guidelines addressing ethical issues pertaining to the curation of human locus-specific variation databases (LSDBs).

Sue Povey , Aida I Al Aqeel , Anne Cambon-Thomsen , Raymond Dalgleish , Johan T. den Dunnen et al.
Human Mutation, 2010, 31 (11), pp.1179. ⟨10.1002/humu.21339⟩
Article dans une revue hal-00589432 v1

Tests génétiques : quels sont les enjeux du libre accès ?

Pascal Ducournau , Anne Cambon-Thomsen , Emmanuelle Rial-Sebbag
Pour la science, 2009, 379, pp.24-27
Article dans une revue halshs-00471392 v1
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Mise en scène, mise en acte de la science.

Pascal Ducournau , Anne Cambon-Thomsen
Communication & langages, 2008, 157, pp.77-89
Article dans une revue halshs-00471386 v1
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Biobanking and Data Sharing: a Plurality of Exchange Regimes

Fabien Milanovic , Anne Cambon-Thomsen , David Pontille
Genomics, society, and policy / ESRC Genomics Network, 2007, 23 (1), pp.17-30. ⟨10.1186/1746-5354-3-1-17⟩
Article dans une revue halshs-00268990 v2
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Trends in ethical and legal frameworks for the use of human biobanks.

Anne Cambon-Thomsen , Emmanuelle Rial-Sebbag , Bartha Maria Bm Knoppers
European Respiratory Journal, 2007, 30 (2), pp.373-82. ⟨10.1183/09031936.00165006⟩
Article dans une revue inserm-00168261 v1

A New Classification of HLA-DRB1 Alleles Differentiates Predisposing and Protective Alleles for Autoantibody Production in Rheumatoid Arthritis

Pierre-Antoine Gourraud , Philippe Dieudé , Jean-Frédéric Boyer , Leonor Nogueira , Anne Cambon-Thomsen et al.
Arthritis Research and Therapy, 2007, 9, pp.Pages 1208-1212. ⟨10.1186/ar2131⟩
Article dans une revue hal-02084374 v1

Biobanks for genomics and genomics for biobanks

Anne Cambon-Thomsen , Pascal Ducournau , P.A. Gourraud , David Pontille
Comparative and fonctional genomics, 2003, 4 (6), pp.628-634
Article dans une revue hal-00198105 v1

Data sharing, research evaluation and Open Science

Mogens Thomsen , Florencia Grattarola , Hanna Shmagun , Chris Erdmann , Laurence Mabile et al.
36TH EUROPEAN IMMUNOGENETICS AND HISTOCOMPATIBILITY CONFERENCE, Apr 2023, Nantes, France
Communication dans un congrès hal-04757934 v1

New regulatory dimensions for transplantation, genetics and stem cell research in the French bioethics law. Consequences for European collaborations

Emmanuelle Rial-Sebbag , Anne Cambon-Thomsen , Anne-Marie Duguet
Joint 36th European Immunogenetics and Histocompatibility Conference, Apr 2023, Nantes, France. pp.328-428
Communication dans un congrès hal-04827424 v1

Débat final (avec Jacques Bordé, Alain Foucaran, Hervé Luga, Alexandra Mendoza-Caminade, Olivier Moch, Bertrand Monthubert, Sylvia Sanchez et les étudiants « Students ex machina »)

Anne Cambon-Thomsen
Les colloques du GREP 2019-2020, Apr 2020, En ligne, France
Communication dans un congrès hal-04691671 v1

Fairness and immunogenetics

Mogens Thomsen , Laurence Mabile , Romain David , Anne Cambon-Thomsen
34th European Immunogenetics and Histocompatibility and 31st British Society for Histocompatibility and Immunogenetics Conference, Apr 2020, Glasgow, United Kingdom. pp.415-416
Communication dans un congrès hal-03128281 v1

Le paysage de l’éthique, la réflexion au fondement de l’action.

Anne Cambon-Thomsen
Les colloques du GREP 2019-2020, Apr 2020, Toulouse, France
Communication dans un congrès hal-04691732 v1

Les attitudes de populations françaises envers l’annonce de la découverte d’anomalies génétiques non sollicitées

Marion Rosier , Myriam Guedj , Patrick Calvas , Julia Sophie , Anne Cambon-Thomsen et al.
10e Assises de Génétique Humaine et Médicale, Jan 2020, Tours, France
Communication dans un congrès hal-04561009 v1

Linking health and administrative data for maternal, child and young adult health

Anita Burgun , Dina V Oksen , Wolfgang Kuchinke , Hans-Ulrich Prokosch , Thomas Ganslandt et al.
9. European Public Health Conference, Nov 2016, Vienne, Austria. ⟨10.1093/eurpub/ckw168.038⟩
Communication dans un congrès hal-01861720 v1
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Towards New Metrics For Bioresource Use

Laurence Mabile , Paola de Castro , Elena Bravo , Barbara Parodi , Mogens Thomsen et al.
20th International Conference on Electronic Publishing, 2016, Gottingen, Germany
Communication dans un congrès inserm-01978631 v1

L’acceptabilité de l’annonce de la découverte d’une anomalie génétique non sollicitée : Approche psychologique

Marion Rosier , Myriam Guedj , María Muñoz-Sastre , Patrick Calvas , Julia Sophie et al.
8èmes Assises de génétique humaine et médicale, Feb 2016, Lyon, France
Communication dans un congrès hal-04561017 v1

Ethical values in relation with Open Science and FAIR data principles applied to human genetics research

Anne Cambon-Thomsen , Alejandra Delfin-Rossaro , Emmanuelle Rial-Sebbag
55th European Society of Human Genetics (ESHG), Jun 2022, Vienne, Austria. Nature, Abstracts from the 55th European Society of Human Genetics (ESHG) Conference: e-Posters, 31, pp.334-335, 2023, ⟨10.1038/s41431-023-01339-3⟩
Poster de conférence hal-04827700 v1
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FAIRness and Immunogenetics

Mogens Thomsen , Laurence Mabile , Romain David , Anne Cambon-Thomsen
EFI (European Forest Institute ) 2021 Annual Conference, Jun 2021, Amsterdam, Netherlands. , 2021
Poster de conférence hal-03740834 v1
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Implementing FAIR in data sharing: who are the actors and what are their responsibilities ?

Romain David , Laurent Dollé , Alison Specht , Sarah Stryeck , Mohamed Salah Yahia et al.
RDA Plenary P15, Mar 2020, Melbourne, Australia. , 2020, ⟨10.5281/zenodo.3743946⟩
Poster de conférence hal-02562211 v1
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Favouring the sharing of samples and data in research. Crediting and rewarding

Mogens Thomsen , Romain David , Laurence Mabile , Anne Cambon-Thomsen , - Rda Interest Group Sharc
33. European Immunogenetics and Histocompatibility Conference, May 2019, Lisbonne, Portugal. Wiley Online Library, HLA, 93, 5, 2019, ⟨10.5281/ZENODO.3080701⟩
Poster de conférence hal-02734549 v1
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How to assess FAIRness to improve crediting and rewarding processes for data sharing? A step forward towards an extensive assessment grid

Romain David , Laurence Mabile , Mohamed Yahia , Anne Cambon-Thomsen , Anne-Sophie Archambeau et al.
RDA 13th (P13) Plenary Meeting, Apr 2019, Philadelphia, United States. , 2019, ⟨10.5281/ZENODO.2625721⟩
Poster de conférence hal-02094678 v1
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Evaluation tool of FAIR criteria literacy and compliance to foster research data sharing

Romain David , Laurence Mabile , Mohamed Yahia , Mogens Thomsen , Anne Cambon-Thomsen
2. Open Science FAIR Conference: « Synergies for Sustainable, Open and Responsible Research », Sep 2019, Porto, Portugal. , 2019
Poster de conférence hal-02164148 v1
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Research data alliance - RDA an organisation towards social and technical bridges to enable the open sharing and re-use of data with full credit to FAIR (Findable, Accessible, Interoperable, Reusable) data requirements.

Anne Cambon-Thomsen , Laurence Mabile , Mogens Thomsen , Romain David
JCAD 2019, Journées Calcul Données : Rencontres scientifiques et techniques du calcul et des données., Oct 2019, Toulouse, France. , Text mainly from RDA website. www.rd-alliance.org/about-rda, 2019, ⟨10.5281/zenodo.3479152⟩
Poster de conférence hal-02310949 v1
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Favouring the sharing of samples and data in research. Crediting and Rewarding

Mogens Thomsen , Romain David , Laurence Mabile , Anne Cambon-Thomsen , Sharc Interest Rda
33rd European Immunogenetics and Histocompatibility Conference, Portugal, 8-11 May 2019, May 2019, Lisbon, Portugal. , 93 (5), pp.256-401, 2019, Special Issue: Abstracts for the 33rd European Immunogenetics and Histocompatibility Conference, Portugal, 8-11 May 2019. ⟨10.1111/tan.13518⟩
Poster de conférence hal-02150822 v1
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How to operationalize and to evaluate the FAIRness in the crediting and rewarding processes in data sharing: a first step towards a simplified assessment grid

Romain David , Laurence Mabile , Mohamed Yahia , Anne Cambon-Thomsen , Anne-Sophie Archambeau et al.
JNSO 2018 - Journées Nationales de la Science Ouverte, Dec 2018, Paris, France. , 2018
Poster de conférence hal-01943521 v2
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Operationalizing and evaluating the FAIRness concept for a good quality of data sharing in Research: the RDA-SHARC-IG (SHAring Rewards and Credit Interest Group)

Romain David , Laurence Mabile , Mohamed Yahia , Anne Cambon-Thomsen , Anne-Sophie Archambeau et al.
assemblée MaDICS 2018, Nov 2018, Strasbourg, France. , 2018, ⟨10.5281/zenodo.1745374⟩
Poster de conférence hal-01929834 v1