Florence Paterson

23
Documents

Publications

Publications

Oncogene-driven advocacy: Collective expertise and therapeutic actionability

Pascale Bourret , Madeleine Akrich , Florence Paterson , Alberto Cambrosio
Health, 2026, 30 (1), pp.118- 140. ⟨10.1177/13634593251336521⟩
Article dans une revue hal-05084123 v1

Living with the rare late-onset genetic disease CADASIL: Improvising “tactics” to appropriate biomedical knowledge and technology

Madeleine Akrich , Florence Paterson , Vololona Rabeharisoa
Social Science & Medicine, 2025, 369, pp.117797. ⟨10.1016/j.socscimed.2025.117797⟩
Article dans une revue hal-04951920 v1

Non-Manipulable Things? Maintaining a Techno-Judicial Imaginary on Sealed Biological Samples in the French Criminal Justice

Vololona Rabeharisoa , Florence Paterson
Engaging Science, Technology, and Society, 2024, Maintenance and Its Knowledges, 9 (3), pp.144 -164. ⟨10.17351/ests2023.1329⟩
Article dans une revue hal-04562962 v1

Genetic diagnosis of individuals at risk of CADASIL: prospect for future therapeutic development

Madeleine Akrich , Vololona Rabeharisoa , Florence Paterson , Hugues Chabriat
Journal of Neurology, 2024, Online ahead of print. ⟨10.1007/s00415-024-12640-6⟩
Article dans une revue hal-04703391 v1

Du sang et des larmes. Force et fragilité des scellés biologiques dans la chaîne criminalistique

Vololona Rabeharisoa , Florence Paterson
Revue d'Anthropologie des Connaissances, 2023, Fragilités matérielles, 17 (4), ⟨10.4000/rac.30829⟩
Article dans une revue hal-04324137 v1
Image document

Social pharmaceutical innovation and alternative forms of research, development and deployment for drugs for rare diseases

Conor Douglas , Fernando Aith , Wouter Boon , Marina de Neiva Borba , Liliana Doganova et al.
Orphanet Journal of Rare Diseases, 2022, 17 (1), pp.344. ⟨10.1186/s13023-022-02476-6⟩
Article dans une revue hal-03792528 v1

Exercer le don : entre transparence et invisibilité

Florence Paterson
Sciences Sociales et Santé, 2016, 34 (4), pp.71-80
Article dans une revue hal-01415866 v1

From 'politics of numbers' to 'politics of singularisation': Patients' activism and engagement in research on rare diseases in France and Portugal

Vololona Rabeharisoa , Michel Callon , Angela Marques Filipe , Joao Arriscado Nunes , Florence Paterson et al.
BioSocieties, 2014, advance online publication, March 31, 2014, pp.24. ⟨10.1057/biosoc.2014.4⟩
Article dans une revue hal-00976580 v1

The "technopolitics of likelihood": the French National DNA Database (FNAEG) and the comparison of genetic profiles

Vololona Rabeharisoa , Florence Paterson
EASST 2018 - Meetings - Making Science, Technology and Society together, EASST (European Association for the Study of Science and Technology), Jul 2018, Lancaster, United Kingdom
Communication dans un congrès hal-01936535 v1

From biosociality to biosocial disruption: Living together - or not - with CADASIL

Madeleine Akrich , Vololona Rabeharisoa , Florence Paterson
EASST Conference 2018. Meetings - Making Science, Technology and Society together, EASST (European Association for the study of science and technology), Jul 2018, Lancaster, United Kingdom
Communication dans un congrès hal-01935494 v1

The techno-politics of likeliness. The French forensic DNA database (FNAEG) and the comparison of DNA profiles

Vololona Rabeharisoa , Florence Paterson
FiTeGe International Conference Genetic. Identities and identification: social issues surrounding non-medical uses of DNA,, Partenaires projet ANR FiTeGe, Oct 2018, Paris, France
Communication dans un congrès hal-01939198 v1

Maintenir une infrastructure en droit. Le Fichier National Automatisé des Empreintes Génétiques face aux suspects

Vololona Rabeharisoa , Florence Paterson
Colloque pour les 50 ans du CSI,, Centre de Sociologie de l'Innovation - MINES ParisTech, Nov 2017, Paris, France
Communication dans un congrès hal-01670141 v1

The dynamics of causes and conditions. The rareness of diseases and patients' organizations' engagement in research in France and Portugal

Vololona Rabeharisoa , Michel Callon , Angela Marques Filipe , Joao Arriscado Nunes , Florence Paterson et al.
4S-EASST annual meeting, Oct 2012, Copenhague, Denmark
Communication dans un congrès hal-00824936 v1

Maintenir une infrastructure en droit : le rôle du comité technique du Fichier national automatisé des empreintes génétiques

Vololona Rabeharisoa , Florence Paterson
Joëlle Vailly. Sur la trace des suspects. L’incorporation de la preuve et de l’indice à l’ère de la génétique, Editions de la Maiosn des sciences de l'homme, pp.25-45, 2021
Chapitre d'ouvrage hal-03199945 v1

Mapping and Analyzing Patient Organnization Movements on Rare Diseases.

Vololona Rabeharisoa , Michel Callon , Florence Paterson , Frédéric Vergnaud
[Research Report] ANR (Agence Nationale de la Recherche - France). 2008
Rapport (rapport de recherche) hal-02394459 v1